Category Archives: Speech

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“Best friend”

Project Alpha tells me all the time now, “Mama, you’re my best friend.” Sometimes he says Weapon X is his best friend too, or Dada.

Weapon X was bugging me for a popsicle today (after he’d already had 4) and I told him no. He started begging “peese Mama” until I told him to stop bugging me, then he hid under the table and after a minute I heard, “Mama, yeh ou no?” lol. That’s what I say to them when they’re not paying attention and I ask a question – “Hey! Yes or no?” They’ve started saying that a lot now.

Their enunciation has not improved yet, but they’re talking so much now and in real sentences, even Weapon X. He said a 10-word sentence to me yesterday, his longest yet.

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Dancin’ feet

Yesterday D did his little dance again, and I told him I liked his new dance. He said, “It’s not new, I did it yesterday.” He is so sarcastic. I have no idea where he gets that from. Ahem.

I’m so glad he’s decided he likes dancing. I’m looking at classes to put them in this summer since they won’t be doing a summer preschool – they’re now too old – and I want them to have some activities out of the house and with other kids. I haven’t put them in anything before now because of their speech delays, other kids treat them badly most of the time. I get nervous taking them to a play area or a park, because inevitably some kid asks “What’s wrong with him?” They used to say “Why doesn’t he talk?” but now both of the boys are speaking, they just are still very delayed for their age.

I wanted to put them in a Saturday morning soccer class this month, but there’s only one slot open. One of anything does me no good, as I always say, so I’m debating whether to go ahead and pay for that slot, then hold off until right before the class and try to bully a Parks & Rec person into letting the other twin in the class too. Otherwise they’ll have to do soccer in August, and I’ll have to try to find something else. I need to find something for June. Thinking about karate, gymnastics, maybe some kind of arts thing. I think karate would be good for helping develop their gross motor skills and their adaptive behavioral skills. Gymnastics too. An art class would help their fine motor skills. I want them to do some kind of sport this summer, but the possible Hawaii trip sometime in July is making that hard to find.

Anyway. Random thoughts again.

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Verbal update

The boys are talking a lot, especially D. His speech is still distorted, but he’s saying a ton. He repeats everything I say, and will usually try to modify his pronunciation (with varying levels of success) when I model the correct way to say something. He has particular trouble with dipthongs and final consonants still, but he’s saying long sentences and telling me stories. C has much clearer speech but less structure (grammar and parts of speech), he tends to be pretty simplistic, like “Go to play!” (his most common refrain, he always wants to go outside and play in the mud, even if he has to make the mud with the hose, or ride his trike up and down the front walkway). He says “Me too!” and “No me!” all the time too, to whatever D is up to.

The “y” sound gives both of them trouble, though D’s favorite word lately is “why?” He asks me why constantly, about everything, and will keep asking until I give in and say I don’t know. We just had a conversation today that went:

Me: We need to wash the car while we’re out, it’s covered in bird poop again.
D: Why, Mama?
Me: Because there’s a tree over the driveway, and the birds like to sit up there, so they poop on the car.
D: Why?
Me: Because birds don’t go on the potty like people.
D: Why?
Me: Because they’re birds.
D: Why Mama?
Me: Um. Because Heavenly Father made them that way.
D: Why Mama?
Me: I guess he thought it was a good idea at the time.
D: Why?
Me: I don’t know. You’ll have to ask him later.

Their other big discovery lately is the Ultimate Boy Realization that the world is their urinal. C will be playing outside and suddenly drop his drawers and pee on the yard/sidewalk/tree/etc. D’s done it a few times too. I suppose I ought to have seen this coming, after all, my brother was only about 5 when he had me judging his peeing contests with his buddy from next door. So now I’m convincing them that peepee needs to go only in the potty.

They love playing pretend right now too. D will tell me “I be Mama, you be baby, C be Dada.” (C  says “Me Dada, buh Mama, you baby.”) They’re really into Max and Ruby, D sings along to the theme song every time it comes on. Yesterday D planted some jelly beans in the backyard, and told me they were going to grow into a beanstalk, and then went on chattering about the beanstalk while he played in the mud for a good hour. I asked him what would happen when the beanstalk grew, and he said he would climb and climb, and C (kiss-in, it sounds like) would climb. I said, what do you think will be at the top? and he said, “Candy. And toys. And a red elephant toy.” and I realized that was the Easter Max & Ruby DVD that my mom had sent them. C liked the “mon-ter” version better. “Biiiiiiig mon-ter, eat me!” I think he’d like to be a monster. My mom pointed out to me that most of the animals they pretend to be are carnivorous: alligators, T-rexes, lions, etc.

We still can’t afford private therapy for them. They’ll be going to the in-between kindergarten next year. Academically they are ready for kindy, but their speech is not ready yet. Their cognitive skills test 3 years ahead, and they’re caught up on fine and gross motor skills and their social skills. D’s still kind of shy when he’s away from C, but I think that’s just his personality. So they won’t be in regular kindergarten, but in the one that’s basically a continuation of the developmental delay preschool, but they also won’t be in the handicapped kindergarten (I have no idea what it’s called, but I’m grateful) and they expect them to be mainstreamed in first grade.

We had another hearing eval (first one was at 18 months), and they said their hearing was fine, though they had suspected from D’s speech that he had some “standing” fluid somewhere. Turned out not. Maybe he used to and it drained and that’s why he suddenly is repeating everything I say? I don’t know. The audiologists were much nicer after I told them I thought the last eval was bullshit, and showed me actual number results and graphs and things this time.

We have an eval scheduled with a developmental pediatrician next month. We’ll see how that goes. I thought the pedi had made an appointment with an ENT to discuss C’s continued stridor from his laryngomalacia, which the ENT assured me he would outgrow by age 2. D was diagnosed with laryngomalacia as well based on that he is identical twin to C (thus I suppose the ENT thinks they are physiologically identical in every respect, which only goes to show that he doesn’t understand twins), C has it, and D makes the same noise. He didn’t bother to scope D and look at his vocal cords. I was very unimpressed by that particular ENT, though. At our follow-up evaluation in 2006, he did not get within 5 feet of C, merely said “oh he’s fine, he’ll outgrow it” and walked off. After making us wait for almost 2 hours to see him. So I make sure I give him bad word of mouth whenever someone mentions anything ENT-related.

So, I’m thinking about switching our pedi. I do still like her, but she’s very much not proactive about getting a diagnosis for my boys, and often acts like I’m just being a pushy mom who’s overreacting. I liked her much better when the boys were babies, and we didn’t know anything was wrong. She’s a great pedi for “normal” kids, I guess, but I need someone to be an advocate with me, not be another person I have to fight in order to get help for my boys. I have to shop around for a new one though. I need to find a local special needs parents group and see who they all like for a coordinating pediatrician.

Anyway, there it is. They’re doing well but we still don’t have a diagnosis for their speech delay. It doesn’t sound like we’ll ever have one. Their therapists don’t think they have verbal apraxia, and everyone agrees that they’re not autistic, so at least we can rule those out. I suppose I just have to keep pushing. And get a new pediatrician.

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My boys are nuts

This morning after they got dressed, D turned to me and said, “Uh oh, Ma bad guy” and then both of them shot me with imaginary guns for a bit (I have no idea where they learned that, if they’ve ever even seen a gun on tv I’d be very surprised, it must be hardwired to the Y chromosome). After I had fallen over appropriately dead, D said, “We killed Ma. We gonna eat Ma.” Then they both pretended to eat me haha. They are so funny.

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Aha! It’s mine!

Finally, I get to actually post to my own blog. My boys have been monopolizing my computer a lot since they started blogging (they love it, they go “bog!” and can already pull up their own blog by themselves) and discovered that Harold and the Purple Crayon is on YouTube (as I told my mother this morning when she wanted to start doing the dog-grooming on her dog by herself, EVERYTHING is on YouTube – including tutorials on dog grooming, and Harold and the Purple Crayon).

So, the hubby is in Washington right now, until May at least. I’m pretty bored being cooped up in the house. The only time I get to go out by myself is during the three or so hours that the boys are in preschool. I have nothing much to do at night either. So… I’m ready to take a trip somewhere. Dunno where. I might go visit Lissette over spring break, but that’s not until mid-April. I’m just so freakin’ BORED and suffering from cabin fever. Tired of the cold. Dying to go back to Hawai’i. Hubby might be doing a 6-week job on O’ahu sometime this summer, so the boys and I will go out with him, but we don’t know when or if it’s for sure yet. It sounds likely though, so keeping fingers crossed.

The boys are starting up in a new speech therapist’s office. Well, two ST actually, one for each of them. They want us to come an hour a week every week. I know the boys need it, but I have no idea how we’re going to pay for it. I hate money. Need to win the lotto. I’ve been thinking about trying to get the boys declared disabled, because the money ought to be enough to pay for twice a week speech therapy, and I think that would help them a lot. I don’t want them to have any problems later because of it, and I don’t even know if I could get it, so I don’t know what to do there… I’m looking for an audiologist to check their hearing properly, not the crap they did at CHKD when the boys were 18 months old. We also need a new ENT, to look at C’s laryngomalacia, which has still not gone away despite the assurances of the complete ass of an ENT who saw him when he was a baby. He had an endoscopy done at 6 weeks, and a bullshit “exam” at 2 years old (guy didn’t even get within 5 feet of him that time, and told me “he’ll outgrow it”. Thanks a lot, jerk, after I waited 2 hours with fussy toddlers and then had to pitch a fit to get in and see your worthless ass). I hate doctors. So, I’m looking at a new ENT specialist. I’ll be on the phone quite a bit on Monday I think. Sigh. I don’t know where the money’s going to come from for all these evals.